Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Tuesday, 6 December 2011

WINNERS ARE GRINNERS!

Winners are grinners!

This past week that has been the absolute truth.

Despite a rough (will be for a while) ride in my reluctant journey into management, there was a silver lining; many prompt responses for attendance to my next meeting - small things make me happy in this job!

After a day that seemed less than happiness on Thursday, with hubby having to take the day off due to a sick little Miss 4 for the second day in a row, I just felt flat. Mother guilt had set in, end of the working week, knowing that I had a deadline to make some curtains for the Miss Ella Skye Backyard Dreams Project and that I should not have changed the colour scheme so late; the house was scruffy and the washing was thankfully not too far behind.

Then I did my e-mail check once the girls were in bed and the house had a run through tidy up. I had won the DirtGirlWorld Grubby giveaway from Childhood 101 with the amazing Christie Burnett. So now my two little "Dirt Girls" will have some new CD's and DVD's for when it is too hot this summer or too wet in the winter! I was thrilled, I WON - woo hoo.

Then I did the inevitable and went online to Facebook and to Childhood 101, got sidetracked and went back to my e-mails. Then surprise number 2 for the night......Pinky McKay, yes the famous author and mother of five and a nurse to boot, liked my comment on her Facebook page. Well actually she didn't like it, she commented below and said she loved my comment. It was a huge thrill and an honour. Further on she also agreed with another reader and I about our views on the bias towards mothers in their role, rather than it being a familial focus.

I then had the honour of being the cubby house queen and waving my magic over a plain little cubby house in a plain little backyard. Now my part was easy sort of ( I had never seen the cubby before mind you). The hard yakka the other team members had to put in though was well rewarded by a fabulous looking garden that was friendly to the needs of a disabled child and her family. It was a job well done by all and then others pitched in more and more towards the end of the day. The excitement and apprehension grew and then came the reveal at about 8:45 that evening. Ella was "wow", jumped on her trampoline, loved her fairy garden and new tea set and table and chairs and walked into the cubby and said "Oh WOW". She was in awe and I was rewarded with something money just can't buy- pure gratitude from the purest of children.

Her mum and dad loved it too, lost for words and a little wine weary they could not believe what we had done for them. I was invited back the next night to share this with my girls who helped me shop and sew. For the first time my 4 year old did not take 2 hours to warm up - she was straight in there and playing- double happiness for me! See my previous post AMAZING to understand what this is all about

So I am still on my grinning high, how can I not be. I see on Facebook the fabulous work we all did for one family who just needed a break and asked nothing of it. We sent them off on a trip for the day with day spas, cars for the dad, picnic lunch and wineries and a splendid meal at A Hereford Beefstouw. We helped some people, raised some serious cash and did some good old fashioned "lending a hand".

For more information and pictures see:http://www.liahealyblog.com

For the fabulous Childhood 101 site here is the link, boredom will be a word of the past and no electricity is required for many of these great learning activities.
http://childhood101.com.

So I will grin away and know I am the luckiest person in the world this week. It is not the first time either, did I tell you about the time I won a new Dyson vacuum? No, well maybe another time.

Until my next who knows when post, stay happy, on track and grateful for all the little things we have, because from little things - big things grow!

Sunday, 13 November 2011

AMAZING

Wow what can I say?

I was done for the day with my blog.

Then I was asked to do something amazing.

My friend is a very talented photographer, unlike me. She and another three businesses are fundraising for a family and their little girl with profound disabilities and a dazzling smile.

http://www.liahealyblog.com/?p=117

I have tagged and shared where I could and will participate in the clothes swap and donate some wine for gifts and auction.

Tonight however I was asked to "PIMP THE CUBBY".

Apparently that is my skill, my forte, only I can girly it up on a budget, which is great in keeping with my most recent post Thrifty not shifty.

To be asked by friends to help them is a privilege and gives you a great feeling.

To be asked by friends to help complete strangers, well that is an honour that words fail to describe.

I hope to do this little girl, her baby sister and mother and father proud.

Girly stuff is easy and I have everything I need to hopefully make this little Cubby a home for these two little cherubs.

It is a 24/7 workload that is unrelenting and unforgiving to parents of disabled children. It does however come with its own joys and triumphs that parents of non-disabled children won't experience in the same way.

http://www.sayso.com.au/weddings/forums/content/

As many of you know I work amongst many disabled clientele and I love my work. To be able to "play" amongst this family with a child with a disability and hopefully create them something delightful well that will be a joy. The last time I did something voluntarily for a family with a disabled child was back when I was studying and a severely disabled 8yo girl, her mum and grandmother were trialling a patterning program and needed volunteers.

While I have just collected a series of things for our cubby house and when I put it together it will look great, I am delighted that I will get to put my creative genius to further use.

I am so grateful to be asked and hope I do them all proud.

xxxx

Thursday, 13 October 2011

IT's MENTAL HEALTH WEEK

Happy Mental Health Week everyone. If ever there was an intentional pun, that sentence was one.

Seriously wouldn't it be great if for one week all of those afflicted with mental illness just had it lifted for the week. So that the cloud of medication, behaviours, substance abuse, physical, emotional or other abuse and the ignorance of society at large was just magically erased and they could live and function as any other person.

I could give you all the stats on suicide, illness, depression, substance abuse, PTSD and so on. But I won't, I don't need to. I know as you do that the problem exists, so I am not intending to statistically verify it in this post, I just wish to share some stories.

Mental Health afflicts so many in society, across all classes, ages, genders and cultures. Yet it remains one of our biggest taboo subjects. I know many who snigger at another's misfortunes of depression or other mental illness and yet I KNOW they silently battle their own. It is these cases of glasshouses and stone throwing that make me not want to help some when the glasshouse eventually caves in on them. But that is not my nature and I help anyway.

It is also the people who should know better that grate my bones when it comes to this topic. My lovely friend and her husband very tragically lost one of their twin girls when she was 6 weeks old. 8 Years on we are all still crying over this event. No we are not pathetic and we are not wallowing in sorrow, we celebrate her strength that she showed in her 6 week battle - she was after all only 30 weeks old in total. It was my friends dad though who I feel said one of the most hurtful things. He is a mental health nurse. It was maybe 6 months down the track, could have been more and my dear friend was still hurting, depressed, grief stricken. I believe rightly so, there is no time limit on grief and she was functioning in life raising her other twin now home from hospital and her little boy. Her babies had arrived at 24 weeks that alone is hard to cope with, to see them have surgery several times and then loose one, no one should have been questioning her illness. Her dad basically told her to get over it, he couldn't understand why she was so upset, still.

He understands now, he sees how we all still feel and support this couple. I am sure if he could take those words back he would. No matter what the cause of a persons mental illness, they have a basic human right to dignity and respect.

A client of mine was sexually abused over a prolonged period as a child. It was violent and her mother the person who should have protected her, shunned her and hid the abuse as many did back then. It has had an untold impact on this woman.

 She has a borderline personality disorder, eating disorder, has been incarcerated for solicitation and theft; she has compulsive thoughts and behaviours, self harming and sexually projects a lot of behaviours and tries to masculinise her appearance, not because she is gender confused, but because she does not want to attract men; she does and they are always the kind that repeat the pattern of abuse. They rape her without full consent, but she won't report as they sometimes give her gifts or money or more than likely drugs. They physically assault her and now we suspect she has an STD, I am surprised she hasn't had one or more before.

Her primary case worker has a practice of disengagement with her and does not want to participate in trying to re-engage this client with mental health services. He thinks it is futile and time wasting. I think he does not care and is not fulfilling his professional duty.

It is our role in healthcare to do no harm, to protect and respect the choices also that our clients make. We are not saying this client can not have sex with men or engage in any of her harmful behaviours but I believe that we have a duty of care to protect this client from herself. Sexualised brutality is all she has ever known. It is like those who were institutionalised and then put out into the community. They floundered because they knew nothing of how to function in the everyday world. Nor does this client, her world is one of use and abuse, self punishment and harm. She needs to be shown the way out, she needs someone to help her navigate her way out of that maze in her mind. She will never be cured, but she is young and has a lot to offer.

My uncle was 40 years old when he gassed himself with carbon monoxide in his treasured ute in front of his treasured pet "Princess". Princess had to be put down, she could not be rehabilitated to re-home with anyone else. My uncle was a worksite union representative and his depression came on the back of some very strong workplace bullying and harassment in a male dominated industry. There was sufficient evidence so that when my tenacious grandmother took the international giant to court, they quickly settled the sum. Money won't replace his lost life. He never was able to get married or have children or finish renovating his house. All because his workplace did not take his mental health and the causative factors contributing to it, seriously.

So Happy Mental Health Week, buy the Big Issue if you are in Australia and support those vendors.
Here are some other resources too as provided by Women's and Children's Health Network, Child and Youth Health, South Australian Government.



  • Australian Infant, Child, Adolescent and Family
    Mental Health Association (AICAFMHA)

    Promotes mental health and wellbeing of Australian infants, children,
    adolescents and their families/carers.
    http://www.aicafmha.net.au
  • Black Dog Institute
    The Black Dog Institute is an educational, research, clinical and community-oriented facility dedicated to improving understanding, diagnosis and treatment of mood disorders.
    http://www.blackdoginstitute.org.au/
  • Men's Line Australia 
    Mensline Australia is a dedicated service for men with relationship and family concerns.(relationships, work, fathering, separation, stress) 24 hour, 7 day a week telephone helpline.
    http://www.menslineaus.org.au/
  • Reach Out!
    An Internet site providing information to young people experiencing distressing
    or complicated situations.
    http://au.reachout.com/ 
  • Reach Out ProProvides access and advice for health care professionals on a range of technologies and online resources for psychosocial support and mental health care provided to young people.
    http://reachoutpro.com.au/  
  • SANE AustraliaA National Charity helping people affected by mental illness. They have a large number of publications for sale.
    http://www.sane.org
Let me know if you know of or have tried others. The MOODGYM was also another good self help site for CBT. It can be found at moodgym.anu.edu.au/.


I am grateful for my inner strength and mental health and wish you all the best with yours. Remember if you need any help or know of someone who does there is always help out there just ask. 

This simple act of asking was what the recently successful national RUOK day was all about. See it here at www.ruokday.com.au/

Thoughts are with all of those afflicted with mental illness, who are homeless and isolated due to this, one day I hope we make progress.  

Tuesday, 20 September 2011

First Do No Harm!


This is the pivotal underpinning of all health care profession learning. We are there to cure, to nurture, and to heal. We are not there to cause pain, harm or suffering and as a nurse, who entered the profession to cause any of the latter? Not me!

By fate I fell into nursing. However, I had always wanted to be a nurse and had a well-developed sense of empathy from a young age. Now however I am struggling: watching the disenfranchised nurses and other healthcare professionals fail in a failing system. I wonder has everyone given up hope and if so why bother coming to work?

We have all dealt with “difficult” patients. The types that don’t conform, don’t comply, don’t fit the boxes and they don’t make our day easy. They challenge us on many levels, exhaust us, insult us and physically and verbally abuse us. They then end up on a merry go round of hospital admissions, sometimes inappropriately and hospital discharges, also sometimes inappropriate. No one wants to draw the short straw to work with “these” people.

However, there is one team that is working with this group of clients. The team operates out of an interface between acute and community and encompasses the complex clients who frequently and inappropriately present to the acute care hospitals. Through pulling a collaborative and client-focused team around each individual they are demonstrating a reduction in inappropriate hospital admissions and emergency department presentations.

In saying inappropriate admissions clients are not excluded from accessing the acute setting, as everyone has a basic right to access healthcare. What is instead focused on is where the best place is to provide the various forms of care required for each individual, and how and who is best placed to manage the client in accessing the care. The traditional silos of various services and health entities operating in isolation is being navigated and permeated, to create an environment of support for the client and for the health care workers.

It is a young team; it is an evolving team and one that is dedicated and passionate. Based originally on the UK Community Matron Model the program also has extended beyond that model to encompass Social Workers in the team to further address the complexity that many in the client group present with. 

Clients come from a hugely diverse background and age range, from those in their 30’s and 40’s right through to octogenarians. 

The system is being challenged on many levels in health and not all are positive, that is the nature of health. However, this small team of which I am privileged to be a part of is challenging it to make a positive impact on many levels, client, systemic, financial and attitudes.

Of all the impacts the team seeks to make, I fear the latter is the hardest one to shift. I watched staff today personalize the acting out behaviors of a chronically ill patient who is dying a slow and difficult death. Their eyes rolled, noses screwed up, sighs were audibly louder than usual, the “not again” comments bounced of the walls. However, in the bed I saw an endearing character that is chronically ill and has had a long-standing history of mental health issues and physical ailments. I saw someone who needed care, compassion and nurturing and unfortunately after an extended period of managing them at home, the right place for their care was a hospital. It is the only place we will be able to facilitate a dignified approach to the end of life care that will be needed to encompass the complex needs that they have.

I fear that the apathy, the cynicism, the disenfranchised are becoming endemic in health care. If workers just stepped back and viewed the situation from a different angle, took a new or novel approach, could they achieve the minutest but most monumental of breakthroughs? Why do they feel infecting everyone around them with the judgmental and detrimental attitudes to these “difficult” clients is productive, beneficial or required? Why do they naively personalize the attacks that the chronically medically and mentally impaired and unwell perpetuate towards them? I don’t have the answers for those questions, but I do set the standard to provide care with a level playing field. In my team everyone deserves a chance to be treated with dignity, to have their situation viewed outside the box that healthcare and professionals have locked them into. It won’t make my day eaiser by taking the path of least resistance and joining the judgment train, I will advocate, I will strive, I will challenge and I will survive long after many of these clients have passed on, hopefully with a dignified death, hopefully with some respect from professionals. I hope; I live, I work another day. These “difficult” clients and the wonderful, dedicated professionals that I am working with inspire me. I am lucky to be me and fall willingly each day into working with complexity.